The International Cavernous Angioma Patient Registry
Angioma Alliance has developed a Patient Registry for individuals affected by Cavernous Angioma. The registry is intended to be a communication tool to facilitate communication between the patient and research communities.
All postings of study announcements will be listed on the Registry website. To include your study, contact Amy Akers at firstname.lastname@example.org. Please include a lay summary of the project, participant inclusion criteria, and contact information.
Angioma Alliance will advertise study announcements on the Registry website, our blog and in our newsletter. Additionally, the registry can be analyzed identify qualified participants. These individuals can be contacted by email with the study announcement, and directed to contact the researcher for more information or to participate.