While we don't yet have an Angioma Community Alliance in the entire state, northern Virginia is covered by the Greater Washington DC Community Alliance. If you are interested in being part of an Angioma Community Alliance in other parts of the state, please contact Stephanie Alband at salband@angioma.org

Greater Washington DC Angioma Community Alliance

Welcome to the Greater Washington DC Angioma Community Alliance. We are a group of Angioma Alliance members and friends who provide mutual support, reach out to the medical community, and organize events. Geographically, our group includes Washington, DC, northern Virginia and Maryland.

Carlos Casaus - Chair

Greg Upwall - Vice-Chair

Alan El-Tagi - Treasurer

Tracy Brown - Events Co-Chair

Carrie Henze - Peer Support Co-Chair

To contact us, please email dcangioma@gmail.com.

You can also become a member of our Facebook group to join our group discussion.

Upcoming Events

June 10, 2018 - Cavernous Angioma Meetup, 3pm, Alternative Paths School, 5632 Mount Vernon Memorial Hwy, Alexandria, VA

Join us for an informal meet and greet. This event will provide us with an opportunity to meet others affected with Cavernous Angiomas in the Greater DC Area and provide support to one another as we weather this journey together. More details here.

October 7, 2018 - Zach Brown 5K for Angioma Alliance, Camp Letts, Mayo, MD. More details soon.

November 9, 2018 - The Angioma Alliance National Patient Conference will be held at the Doubletree Hotel in Silver Spring, MD. More details soon.

Clinical Centers

There are no Angioma Alliance-recognized Clinical Centers at this time, but we expect to announce a nearby Center in mid-2018.