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Upcoming Events

 

  

 Please join us at one of our upcoming Fall events in CT, MA, IN, MD & CA!

Don't see an event in your area? 

 Reach out to plan something in your community! 
 
 PLEASE GO TO OUR FACEBOOK EVENTS PAGE!

Join the movement - participate, donate and meet others affected by CCM!

 
 

TORRINGTON WINE TASTING
Join us on September 15 in in Goshen, CT for this Wine and Beer tasting! This special evening will include appetizers, chocolate, musical entertainment and more! Tickets can be purchased at Ponte's Package Store, 1270 E. Main St., Torrington, CT. $30 advance purchase, $35 at the door, $50 VIP! Download a flyer here!

 

 

 
 


BIKING FOR BRAINS - BOSTON
Join us on September 16 as Kent McCord bikes more than 100 miles from his home in Connecticut to Boston Children's Hospital where his daughter Shannon had brain surgery.
Choose your course and meet us at BCH or create a Biking for Brains in your community.  Pick your distance and ask people to join and support you! 5, 10, 25, 50 or 100+ miles, it's up to you!  Find out more here!

 

 

 
 


BIKING FOR BRAINS - INDIANAPOLIS
Join us on September 16 as Kim Hofelich, biking in honor of her family, hosts an 8-mile bike ride on the Indianapolis Cultural Bike Trail.  Bike & surrey rentals available! Bring a picnic lunch!
Ask people to join and support you.  Find out more here!

 

 

 
 

ZACH BROWN 5K
Join us on September 17 for the 5th annual Zach Brown 5k in Edgewater, MD! Together we will continue to raise funds for research for treatment options for those who are living with a cerebral cavernous malformation. Find out more here!

 

 

 
 

ORANGE COUNTY WALK/5K HONORING FLO JO
Join us on September 24 at Flo Jo Park in Mission Viejo, CA for this inaugural Walk & 5K to raise funds and awareness honoring Florence Joyner, considered the fastest woman on earth, who passed away from complications related to CCM. Mary Joyner, daughter of Flo Jo & past America’s Got Talent contestant will sing the National Anthem! Find out more here!

 

 

 
 

MALIBU WALK
Join us on October 24 at Zuma Beach in Malibu, CA for our 2nd Annual Malibu Angioma Alliance Walk! Food/refreshments, raffle and family-friendly activities are some of the highlights! Donate/raise $35 minimum and you will receive a walk shirt. Find out more here!

 

 

 
 

CARLSBAD MARATHON
On January 14 almost 10,000 people will come together from all over the world to run/walk in this half and full marathon. Join us in sunny San Diego! Escape the winter and challenge yourself!
Angioma Alliance is a participating charity in the event. Raise $500 and receive a free technical running shirt! There is also a Kids Mile Run at Legoland! Find out more here!

 

 

 
 


HERE IS YOUR TICKET
Here is your ticket to hold your own event!  We are a volunteer-driven organization that cannot be supported without the efforts of countless volunteers across the country who hold fundraising events in their communities to benefit the Angioma Alliance.
If you are interested in holding an event in your community reach out to Stephanie to get started!

 

 

 
 

 

 
 

 

 

Just want to make a donation?  Go to www.angioma.org/donate

 

 

 

PAST & ANNUAL EVENTS

New York Mets Fundraiser
June 4, 2017
Citi Field

Join us as the Mets face the Pirates, and we raise funds and spread awareness of Cavernous Angioma.

Get Involved!

  • Purchase tickets to the game and attend!  You can purchase individual tickets here
  • Sell tickets to your friends and family!  Reach out to Stephanie at salband@angioma.org and sell tickets using this form!
  • Sponsor the event!  More info is here!
  • Donate directly to the event here!

Download the flyer here!

Cavernous Angioma Awareness Month
Month of June

June is International Cavernous Angioma Awareness Month. Do your friends and family really understand what a cavernous angioma is? Would you like to help us educate the world? This month is your opportunity to share the information you have with anyone who is interested. 

1. Create a short video about your CCM story and why you are involved in raising awareness. (Make sure your phone is horizontal). 
2. Post on social media and #cureforccm and #brainsshouldntbleed and share with media in your community.
You can also make a donation online at www.angioma.org/donate!

Learn how to get involved here

 
Cavernous Angioma Night at the Great American Ballpark
Held Annually in Spring
Cincinnati, OH

Join us as the Reds spread awareness of Cavernous Angioma to ballpark attendees and the viewing audience at home.  Buy tickets that benefit Angioma Alliance and take part in a pre-game ceremony on the field!  Get Involved!

  • Purchase tickets to the game and attend! 

  • Sell tickets to your friends and family! 

  • Sponsor the event! 

  • Donate directly to the event!

Last years details are here!  Reach out to Tony to get more involved!

Rare Disease Day
Held Last Tuesday of February

Help Angioma Alliance raise awareness on for Rare Disease Day!

1. Create a short video about your CCM story and why you are involved in raising awareness. (Make sure your phone is horizontal). 
2. Post on social media and #cureforccm and #rarediseaseday. 
You can also make a donation online at www.angioma.org/donate!

Let's stand up and be heard!  You can find more info here!