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Upcoming Events

photo by Gary Colgan

Below is a list of upcoming events.  Don't see anything in your area?  Reach out to us to discuss organizing something in your area!

Rare Disease Day
February 28, 2017

Help Angioma Alliance raise awareness on February 28 for Rare Disease Day!

1. Create a short video about your CCM story and why you are involved in raising awareness. (Make sure your phone is horizontal). 
2. Post on social media and #cureforccm and #rarediseaseday
You can also make a donation online at www.angioma.org/donate!

Let's stand up and be heard!  You can find more info here!


University of New Mexico CCM Family Conference
April 8, 2017, 8:00 - 4:30 pm
University of New Mexico
UNM Domenici Center Albuquerque, NM

Light Breakfast Served at 8:00 AM and Lunch Served at 12:00 PM Presentations in the Morning with Opportunities for Research Participation in the Afternoon 
Open to those affected by CCM.
Questions:  505-272-3194 or  Email to marybartlett@salud.unm.edu


Capitol Hill Lobby Day
May 2, 2017
Washington, DC

More details coming soon!

Cavernous Angioma Night at the Great American Ballpark
May 8, 2017
Cincinnati, OH

Join us as the Reds face the Yankees, and we spread awareness of Cavernous Angioma to a sold-out ballpark and the viewing audience at home.

Highlights include:
1. Opportunities for sponsorship
2. Opportunities to participate in the pre-game ceremony
3. How to purchase tickets
4. A patient meeting earlier in the day